To describe the perceptions of young adults with sickle cell disease concerning their disease experience.Sickle cell disease is a lifelong, genetic condition with both acute and chronic painful exacerbations. Little is known of the experiences of young adults with sickle cell disease.This study used a qualitative, descriptive design with semi-structured, life review interviews.Between August 2010-September 2012, purposive sampling was used to recruit participants with a known sickle cell disease diagnosis who were ages 18-35 years, were being seen in an outpatient sickle cell clinic and were English speaking. Participants provided demographic information and responded to two interviews. A content analysis was then used to interpret participants' narratives of their experiences of living with sickle cell disease.A sample of 29 young adults with sickle cell disease consisted of 79·3

作者：Nadine, Matthie；Jill, Hamilton；Diana, Wells；Coretta, Jenerette

来源：Journal of advanced nursing 2016 年 72卷 6期