Direct assessment of the patient perspective is necessary to thoroughly understand patients' experiences of disease. We aimed to examine information from children with short stature on their perceived HrQoL within 5 European countries.Patients, identified through clinical databases, were approached by their clinicians according to the inclusion criteria regarding a diagnosis of growth hormone deficiency or idiopathic short stature and age requirements. A focus group methodology was applied in 84 children and 112 parents. Based on a category system, individual statements were allocated to domains. To evaluate the emerging topics, qualitative content analysis was conducted. Domains and respective coding frequencies per category were compared across countries and respondents.The highest number of statements produced by the children and parents were related to social (29

作者：Rachel, Sommer；Monika, Bullinger；John, Chaplin；Ju-Ky, Do；Mick, Power；Andreas, Pleil；Julia, Quitmann

来源：Clinical psychology & psychotherapy 2017 年